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New drug for rare disease wins approval, a "comfort" for family too late to benefit
CBS News "The days are long, but the years are short." That's how Jennifer and Tracy VanHoutan, the parents of Noah and Laine and Emily, describe what it's like to have a child with Batten disease, a rare and devastating neurological condition that took their ... FDA approves Brineura for type of Batten disease |
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