Parents cheer new treatment for rare disease though their children won't benefit - ABC News

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Parents cheer new treatment for rare disease though their children won't benefit ABC News For eight years, Tracy and Jennifer VanHoutan have been working to understand and find a treatment for a rare genetic disorder called Batten disease. The VanHoutans aren't scientists or doctors with medical degrees or a laboratory; they're parents of ... FDA approves new treatment for young children with Batten diseaseThe Pharmaceutical Journal all 5 news articles »

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